In loving memory of my precious Angel. Born Dec 2, 2008, passed June 24, 2013.
I called him Angel.
He was born at Health Sciences North by an emergency Cesarean (C-section). He was 4 lbs 1 oz at birth and 3 lbs 9 oz when he came home. He was so tiny, so beautiful and so full of life. He had blue eyes.
He grew and developed on a normal day. At about 2 years old we noticed he was not responding to his name. A hearing test was done which indicated all was well.
He grew and played. He loved kinder eggs(he would eat the chocolate at this point).
He was eating 4 jars of baby food per day and drinking lots of milk. He would not drink from a glass and would not hold his bottle.
One day he got sick when he was eating. Gradually, he did not want the baby food any longer, he did not want food. he would eat crackers, all kinds of crackers, some cookies, chips, bananas and his favourite hickory sticks.
He tried to eat cardboard paper, he would chew it and then spit it out later. He began eating the paper off crayola crayons. The were non toxic.
He was 4 1/2 years old when he passed away suddenly with no warning and my light turned to darkness.
I watched, card for, loved, my precious angel 24/7. He slept with me. I gave him a bottle at least every 2 hours, all night long, every hour during the day. he had every possible cracker he liked, Hickery Sticks, fruit. I offered him milk, and food constantly. Boxes of crackers were everywhere.
At 3 1/2 he was playing, singing , running, loving life. He loved playing outside. Slowly, change in him began. He wasn't sick, he bean to lose weight, but he was losing his baby fat and getting so tall.
He didn't want to go trick or treating on Halloween. He sat on the floor and opened his gifts at Christmas. He loved tearing off the wrapping paper.
In May 2013 he went outside. He did not appear to have any memory of the previous summer. He rode his bicycle once and that was all he wanted to do. he appeared out of breath. He played in his sandbox, he played on his swings and glider. He would sit with his Sara(his mother) on the glider and go back and forth. or he would go on the swing on Sara's lap. I would sit him on the tree house stairs and watch and talk to him.
We went for a short walk, my Angel, Sara and I. He wanted me to go. It was the last walk we ever took together and the feel of his little hand in mine is forever engraved on my heart.
I would push my precious Angel for hours in his car and give him his bottle. Yes, he remained on a bottle, and he was not trained.
He would watch his videos on Netflix. He used to watch dvds, then one day he decided he wouldn't watch them anymore. From that point on, he would only watch tv from Netflix, and his VHS player. He could say Caliou, or Dora, he knew what the tapes were from looking at them.He loved his Apple Ipod as well. He would go to Youtube and play his favourite shows, or to Netflix. He would play his games, he could place the abc's in the right place. He was so smart in his special way. He knew how to use his ipod, a computer and the tv.
One day his VCR broke in his room. Once that happened, he would no longer go in his room. Even though his TV and VCR were replaced. It was over a year that he refused to go back in his room again, except to take me out, if i went in there to sort his clothing.
One day he no longer wanted his hair washed, when he had a bath. I began washing his hair daily when he was sleeping. I would bring a container of water into the room with clothes. I would shampoo, rinse his hair with a cloth, and dry it, strand by strand. He would get very upset if he woke up and discovered that his hair was wet.
One day he would no longer o into the bathroom altogether, he would no longer have baths. He did not like water or being wet. I would wash him in the morning when he was waking up, from the waist down and change him, and get him dressed. I would have to slightly wet his pajama shirt and put his hand on it so he could feel the wetness. Then and only then could i change his shirt.
In the evening, when he went to bed, I would put warm water into an empty wipes container with a cloth, and he would let me take off his shirt, and undershirt, and wash his top part, his arms, hands and face, allowing me to put his pj shirt on for the night.
And then i would lift him on the bed and Sara would change his pullup, finish putting on his pjs, and socks.
Angel was always well dressed. He wore long sleeved shirts and vests. He didn't like to have bare skin, and he always wore a hat and sweater or jacket outside.
He was a child who had a routine for everything. When we went to bed, he had his fisher price record player, his soothers, his night time treasure box and various toys. The all had to be carried into the bedroom and put down on the floor. He had a video tape, wiggles "Top of the Tots", he would bring that and put it into the VCR. He would lie down beside me and I would go to Youtube, and hold the phone in one hand over him and the bottle in my other hand to give him milk. He would pick his videos, always in the same order. He would hold his hands out want me to pat them over and over again. When he was ready to go to sleep he would roll over onto his side and put his hand behind his bum and i would pat it until he fell asleep. I miss him so much. I would place him on his tummy and touch his face and he would smile in his sleep.
In the morning, I would give him his bottle before he woke up, and change him. He would sit up on the bed while i brought all his toys out to the living room.
He had six plastic circles which came in a large kinder egg which his uncle Jody bought for him last Easter. These he held in his hand for 2 months. At night i would take them out of his hands and place them on the headboard. In the morning I would put them back in his hand.
Angle had a small box he would put his 6 soothers into, along with a sock filled with toys, cards and trains. Then he would raise his arms for me to pick him up. He would smile at me with his beautiful smile. Then he would take his video tape out of the VCR and we would go to the living room. He would always place the tape between 2 other tapes so his would always be in the middle on his desk. Then he would sit in his blue special chair and wait. I would turn on the TV and get his kinder egg and bottle and the would begin.
Angle loved opening kinder eggs. He loved the bracelets in the pink eggs. Every morning, and every day when he got up he would have a kinder egg. It was his special thing.
I would sit beside him and give him his milk and push him in his car. He would sing with his videos, he loved to play the organ, loved his Ipod and his trains.
He never complained or cried. He was God's special gift to us. He was so special, so smart, so beautiful and happy. He was Autistic. He passed suddenly. Now my life is empty for he was my everything.
Diane(Brenda) Sears Piispanen
I called him Angel.
He was born at Health Sciences North by an emergency Cesarean (C-section). He was 4 lbs 1 oz at birth and 3 lbs 9 oz when he came home. He was so tiny, so beautiful and so full of life. He had blue eyes.
He grew and developed on a normal day. At about 2 years old we noticed he was not responding to his name. A hearing test was done which indicated all was well.
He grew and played. He loved kinder eggs(he would eat the chocolate at this point).
He was eating 4 jars of baby food per day and drinking lots of milk. He would not drink from a glass and would not hold his bottle.
One day he got sick when he was eating. Gradually, he did not want the baby food any longer, he did not want food. he would eat crackers, all kinds of crackers, some cookies, chips, bananas and his favourite hickory sticks.
He tried to eat cardboard paper, he would chew it and then spit it out later. He began eating the paper off crayola crayons. The were non toxic.
He was 4 1/2 years old when he passed away suddenly with no warning and my light turned to darkness.
I watched, card for, loved, my precious angel 24/7. He slept with me. I gave him a bottle at least every 2 hours, all night long, every hour during the day. he had every possible cracker he liked, Hickery Sticks, fruit. I offered him milk, and food constantly. Boxes of crackers were everywhere.
At 3 1/2 he was playing, singing , running, loving life. He loved playing outside. Slowly, change in him began. He wasn't sick, he bean to lose weight, but he was losing his baby fat and getting so tall.
He didn't want to go trick or treating on Halloween. He sat on the floor and opened his gifts at Christmas. He loved tearing off the wrapping paper.
In May 2013 he went outside. He did not appear to have any memory of the previous summer. He rode his bicycle once and that was all he wanted to do. he appeared out of breath. He played in his sandbox, he played on his swings and glider. He would sit with his Sara(his mother) on the glider and go back and forth. or he would go on the swing on Sara's lap. I would sit him on the tree house stairs and watch and talk to him.
We went for a short walk, my Angel, Sara and I. He wanted me to go. It was the last walk we ever took together and the feel of his little hand in mine is forever engraved on my heart.
I would push my precious Angel for hours in his car and give him his bottle. Yes, he remained on a bottle, and he was not trained.
He would watch his videos on Netflix. He used to watch dvds, then one day he decided he wouldn't watch them anymore. From that point on, he would only watch tv from Netflix, and his VHS player. He could say Caliou, or Dora, he knew what the tapes were from looking at them.He loved his Apple Ipod as well. He would go to Youtube and play his favourite shows, or to Netflix. He would play his games, he could place the abc's in the right place. He was so smart in his special way. He knew how to use his ipod, a computer and the tv.
One day his VCR broke in his room. Once that happened, he would no longer go in his room. Even though his TV and VCR were replaced. It was over a year that he refused to go back in his room again, except to take me out, if i went in there to sort his clothing.
One day he no longer wanted his hair washed, when he had a bath. I began washing his hair daily when he was sleeping. I would bring a container of water into the room with clothes. I would shampoo, rinse his hair with a cloth, and dry it, strand by strand. He would get very upset if he woke up and discovered that his hair was wet.
One day he would no longer o into the bathroom altogether, he would no longer have baths. He did not like water or being wet. I would wash him in the morning when he was waking up, from the waist down and change him, and get him dressed. I would have to slightly wet his pajama shirt and put his hand on it so he could feel the wetness. Then and only then could i change his shirt.
In the evening, when he went to bed, I would put warm water into an empty wipes container with a cloth, and he would let me take off his shirt, and undershirt, and wash his top part, his arms, hands and face, allowing me to put his pj shirt on for the night.
And then i would lift him on the bed and Sara would change his pullup, finish putting on his pjs, and socks.
Angel was always well dressed. He wore long sleeved shirts and vests. He didn't like to have bare skin, and he always wore a hat and sweater or jacket outside.
He was a child who had a routine for everything. When we went to bed, he had his fisher price record player, his soothers, his night time treasure box and various toys. The all had to be carried into the bedroom and put down on the floor. He had a video tape, wiggles "Top of the Tots", he would bring that and put it into the VCR. He would lie down beside me and I would go to Youtube, and hold the phone in one hand over him and the bottle in my other hand to give him milk. He would pick his videos, always in the same order. He would hold his hands out want me to pat them over and over again. When he was ready to go to sleep he would roll over onto his side and put his hand behind his bum and i would pat it until he fell asleep. I miss him so much. I would place him on his tummy and touch his face and he would smile in his sleep.
In the morning, I would give him his bottle before he woke up, and change him. He would sit up on the bed while i brought all his toys out to the living room.
He had six plastic circles which came in a large kinder egg which his uncle Jody bought for him last Easter. These he held in his hand for 2 months. At night i would take them out of his hands and place them on the headboard. In the morning I would put them back in his hand.
Angle had a small box he would put his 6 soothers into, along with a sock filled with toys, cards and trains. Then he would raise his arms for me to pick him up. He would smile at me with his beautiful smile. Then he would take his video tape out of the VCR and we would go to the living room. He would always place the tape between 2 other tapes so his would always be in the middle on his desk. Then he would sit in his blue special chair and wait. I would turn on the TV and get his kinder egg and bottle and the would begin.
Angle loved opening kinder eggs. He loved the bracelets in the pink eggs. Every morning, and every day when he got up he would have a kinder egg. It was his special thing.
I would sit beside him and give him his milk and push him in his car. He would sing with his videos, he loved to play the organ, loved his Ipod and his trains.
He never complained or cried. He was God's special gift to us. He was so special, so smart, so beautiful and happy. He was Autistic. He passed suddenly. Now my life is empty for he was my everything.
Diane(Brenda) Sears Piispanen